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Apert Syndrome (10)
Cleft Lip and Palate (30)
Craniosynostosis (2)
Langer-Giedion Syndrome (2)
Parry-Rombergs Syndrome (4)
Smith-Magenis Syndrome@ (3)
Stickler's Syndrome (4)
Treacher Collins Syndrome (4)

 

20 sites in Facial Differences

AboutFace Save
International organization providing information and emotional support to individuals and their families affected by facial differences and disfigurements.
http://www.aboutfaceinternational.org/   
Acne Support Group Save
Information and support on acne, including top ten tips, beauty tips and problems.
http://www.stopspots.org/   
Beneath the Surface Save
Offers support and understanding to individuals of facial difference.
http://beneaththesurfaceweb.com   
Birthmark Support Group Save
From the UK-based group, giving information about birthmarks, the process of getting help, treatment centres, newsletters, diaries of events and links to other associated support groups.
http://www.birthmarksupportgroup.org.uk/   
Cancer Of The Eye Linkline (CELL) Save
UK-based helpline for people whose lives are affected by loss of an eye through cancer or trauma. Support, information and links.
http://pages.zoom.co.uk/cell/index.htm   
Changing Faces Save
UK-based charity giving support and information to people with facial disfigurement and other facial differences and their families, and the professionals who work with them.
http://www.changingfaces.co.uk   
Children's Craniofacial Association Save
Dedicated to improving the quality of life for facially disfigured children and their families; addresses the medical, financial, psychosocial, emotional, and educational concerns relating to craniofacial conditions.
http://www.ccakids.com   
Crouzon's Bridge of Hope Foundation Save
Bridging the gap between hope and knowledge for those suffering with Crouzon Syndrome.
http://www.crouzonsbridge.org   
FACES: The National Craniofacial Association Save
Support and resources concerning craniofacial disorders including information on 28 specific craniofacial disorders. Financial assistance for secondary costs. USA based organization.
http://www.faces-cranio.org   
Foundation for Faces of Children Save
Expert information for families and health care professionals about craniofacial conditions.
http://www.facesofchildren.org   
Johns Hopkins Center for Craniofacial Development and Disorders Save
Provides information on research, education and clinical care for researchers and physicians. An educational interactive resource for families. Details activies at the Center.
http://www.hopkinsmedicine.org/cranio...   
Let's Face It USA Save
A nonprofit network for people with facial difference, their families, friends and professionals. Links professionals, patients, parents and communities to each other and to networks, books and articles.
http://www.faceit.org/   
Moebius Syndrome Save
Moebius Syndrome support, information and resource site.
http://www.moebius1.org   
Sincere Meditations Save
Born with a severe facial disfigurement, David Roche has turned his "flaw" into a source of strength and he brings this to his audiences.
http://www.davidroche.com/lamott.htm   
Support Works Online Save
Resources to find or form support groups related to facial difference. Information on medical research.
http://www.supportworks.org/cat806.htm   
The Craniofacial Society of Great Britain and Ireland Save
Information about the society, which is a multidisciplinary forum for specialists.
http://www.cfsgb.org.uk/   
The DRM WebWatcher: Facial Differences Save
A Disability Resources monthly guide to online resources about craniofacial differences.
http://www.disabilityresources.org/FA...   
The New Face Foundation Save
A non-profit corporation that treats children born with facial and craniofacial deformities such as cleft lip and cleft palate.
http://www.newfacefoundation.com   
The Personal Side of Craniofacial Differences Save
Personal accounts of living with craniofacial conditions, and related webrings.
http://members.tripod.com/~Craniofaci...   
XP Support Group Save
UK-based organisation giving support, help and information to those affected by xeroderma pigmentosum and other photosensitive conditions.
http://xpsupportgroup.org.uk   

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