IFOPA - International Fibrodysplasia Ossificans Progressiva Association Save
Support group for families. Information about the condition, treatment, and research efforts.
http://www.ifopa.org/   

McKay Orthopaedic Research Laboratory Save
Summaries of current research projects at the University of Pennsylvania.
http://www.uphs.upenn.edu/orl/researc...   

SFGate Save
San Francisco Chronicle article describes the disease, includes anecdotes about the lives of several patients.
http://sfgate.com/cgi-bin/article.cgi...   

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