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Health
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Conditions and Diseases
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Musculoskeletal Disorders
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Connective Tissue
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Marfan Syndrome
27 sites in Marfan Syndrome
A Diary about Marfan's
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Marfan's patients diary of the diseases events in her life. Includes a list of links.
http://www.angelfire.com/ms2/CysticFi...
American Heart Association - Marfan's Syndrome
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Includes definition, problems with blood vessels and cardiac valves, treatment, lifestyle changes, and links to other heart related conditions.
http://www.americanheart.org/presente...
Canadian Marfan Association
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Information, articles, events, a patient survey, and products. Also contains an article on Pharaoh Akhenaten who was believe to have the disease.
http://www.marfan.ca/
Central Ohio Marfan Support Group
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Focuses on the support group with links to information about the disease. Includes a calendar of events for meetings.
http://www.homestead.com/marfansupport/
Guide to Marfans Syndrome
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Features forums, @marfanssyndrome.net email addresses and contains symptoms as well as guestbooks for both doctors and patients, a chat room and scheduled chats with professionals.
http://www.marfanssyndrome.net
International Federation of Marfan Syndrome Organizations
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A global information center providing links to Organizations around the world.
http://www.marfanworld.org/
Life and Issues of Marfan's Syndrome
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Personal site by which describes the pathology and gives a bit of advice.
http://www.io.com/~cortese/marfan/
Living With Marfans
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This site is an in depth look into the life of someone who has Marfan Syndrome and what they have learned along the way.
http://jrmarfan58.com
MFS Type 1 Fibrillin Gene
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A comprehensive site including major resources listed as well as genetic information.
http://www3.ncbi.nlm.nih.gov/entrez/d...
Marfan Association UK
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The support association in the UK for this genetic condition which can affect the heart, eyes and connective tissue.
http://www.marfan.org.uk
Marfan Support and Information
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Support group in New South Wales, Australia.
http://www.marfan.net.au
Marfan Syndrome
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A Question-Answer format page of information.
http://www.medicinenet.com/Script/Mai...
Marfan Syndrome
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Comprehensive guide to this connective tissue disease.
http://www.ygyh.org/marfan/whatisit.htm
Marfan Syndrome
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Article from eMedicine.
http://www.emedicine.com/PED/topic137...
Marfan Syndrome
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Online chapter from The Merck Manual of Medical Information.
http://www.merck.com/mrkshared/mmanua...
Marfan Syndrome: Does Diet Play a Role
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Explores the idea that the disease is affected not by the fibrillin gene, but by one's diet.
http://www.ctds.info/marfan.html
Marfan Syndrome Forum
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Describes the author's personal experiences with this Syndrome and asks readers to share their experiences. Also include links for further research.
http://hometown.aol.com/bjthaler6/myh...
Marfans Research Foundation
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Irish charity with information on fund raising activities and the condition.
http://www.marfansresearchfoundation.ie
National Marfan Foundation
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Providing accurate and timely information about the disorder to patients, family members and physicians.
http://www.marfan.org/
Polish Marfan Association
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General information including dealing with pregnancy with the disease. Also has contact information for the association and links to other organizations.
http://www.marfan.sprint.pl/
Questions and Answers about Marfan Syndrome
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From the National Institutes of Health.
http://www.niams.nih.gov/hi/topics/ma...
Slovak Marfan Association
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The association provides a network of patients, relatives and doctors in Slovakia, informs and helps patients to improve the medical care.
http://members.fortunecity.com/marfan
South African Marfan Syndrome Organisation
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Information in English and Afrikaans,including an interactive diagnosis tool that allows for an accurate diagnosis.
http://www.marfan.org.za
Swedish Marfan Association
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Here you can find plenty of information the disease including symptoms and other disorders that are similar to Marfan's. Also contains information about the Swedish Association.
http://user.tninet.se/~sda301a/
The Mystery of Akhenaten: Genetics or Aesthetics?
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A history of the pharoah along with theories applied to what he may have had, including Marfan's.
http://www.heptune.com/Marfans.html
Univ. of Washington - Marfan Syndrome
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What the disease is and includes the impacts on daily life.
http://www.orthop.washington.edu/arth...
Yahoo! Support Group
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Started by a person with the syndrome, this site offers support for any person with the disease as well as family of the person.
http://health.groups.yahoo.com/group/...
Forum
- Usenet alt.support.marfan
See also
Health: Conditions and Diseases: Musculoskeletal Disorders: Connective Tissue: Ehlers-Danlos Syndrome
(
29)
Health: Conditions and Diseases: Musculoskeletal Disorders: Connective Tissue: Hypermobility Syndrome
(
14)
The category Marfan Syndromein other languages
Japanese
(
3)
Spanish
(
7)
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