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27 sites in Marfan Syndrome

A Diary about Marfan's Save
Marfan's patients diary of the diseases events in her life. Includes a list of links.
http://www.angelfire.com/ms2/CysticFi...   
American Heart Association - Marfan's Syndrome Save
Includes definition, problems with blood vessels and cardiac valves, treatment, lifestyle changes, and links to other heart related conditions.
http://www.americanheart.org/presente...   
Canadian Marfan Association Save
Information, articles, events, a patient survey, and products. Also contains an article on Pharaoh Akhenaten who was believe to have the disease.
http://www.marfan.ca/   
Central Ohio Marfan Support Group Save
Focuses on the support group with links to information about the disease. Includes a calendar of events for meetings.
http://www.homestead.com/marfansupport/   
Guide to Marfans Syndrome Save
Features forums, @marfanssyndrome.net email addresses and contains symptoms as well as guestbooks for both doctors and patients, a chat room and scheduled chats with professionals.
http://www.marfanssyndrome.net   
International Federation of Marfan Syndrome Organizations Save
A global information center providing links to Organizations around the world.
http://www.marfanworld.org/   
Life and Issues of Marfan's Syndrome Save
Personal site by which describes the pathology and gives a bit of advice.
http://www.io.com/~cortese/marfan/   
Living With Marfans Save
This site is an in depth look into the life of someone who has Marfan Syndrome and what they have learned along the way.
http://jrmarfan58.com   
MFS Type 1 Fibrillin Gene Save
A comprehensive site including major resources listed as well as genetic information.
http://www3.ncbi.nlm.nih.gov/entrez/d...   
Marfan Association UK Save
The support association in the UK for this genetic condition which can affect the heart, eyes and connective tissue.
http://www.marfan.org.uk   
Marfan Support and Information Save
Support group in New South Wales, Australia.
http://www.marfan.net.au   
Marfan Syndrome Save
A Question-Answer format page of information.
http://www.medicinenet.com/Script/Mai...   
Marfan Syndrome Save
Comprehensive guide to this connective tissue disease.
http://www.ygyh.org/marfan/whatisit.htm   
Marfan Syndrome Save
Online chapter from The Merck Manual of Medical Information.
http://www.merck.com/mrkshared/mmanua...   
Marfan Syndrome: Does Diet Play a Role Save
Explores the idea that the disease is affected not by the fibrillin gene, but by one's diet.
http://www.ctds.info/marfan.html   
Marfan Syndrome Forum Save
Describes the author's personal experiences with this Syndrome and asks readers to share their experiences. Also include links for further research.
http://hometown.aol.com/bjthaler6/myh...   
Marfans Research Foundation Save
Irish charity with information on fund raising activities and the condition.
http://www.marfansresearchfoundation.ie   
National Marfan Foundation Save
Providing accurate and timely information about the disorder to patients, family members and physicians.
http://www.marfan.org/   
Polish Marfan Association Save
General information including dealing with pregnancy with the disease. Also has contact information for the association and links to other organizations.
http://www.marfan.sprint.pl/   
Slovak Marfan Association Save
The association provides a network of patients, relatives and doctors in Slovakia, informs and helps patients to improve the medical care.
http://members.fortunecity.com/marfan   
South African Marfan Syndrome Organisation Save
Information in English and Afrikaans,including an interactive diagnosis tool that allows for an accurate diagnosis.
http://www.marfan.org.za   
Swedish Marfan Association Save
Here you can find plenty of information the disease including symptoms and other disorders that are similar to Marfan's. Also contains information about the Swedish Association.
http://user.tninet.se/~sda301a/   
The Mystery of Akhenaten: Genetics or Aesthetics? Save
A history of the pharoah along with theories applied to what he may have had, including Marfan's.
http://www.heptune.com/Marfans.html   
Univ. of Washington - Marfan Syndrome Save
What the disease is and includes the impacts on daily life.
http://www.orthop.washington.edu/arth...   
Yahoo! Support Group Save
Started by a person with the syndrome, this site offers support for any person with the disease as well as family of the person.
http://health.groups.yahoo.com/group/...   
Forum - Usenet alt.support.marfan

See also
Health: Conditions and Diseases: Musculoskeletal Disorders: Connective Tissue: Ehlers-Danlos Syndrome (29)
Health: Conditions and Diseases: Musculoskeletal Disorders: Connective Tissue: Hypermobility Syndrome (14)

The category Marfan Syndromein other languages
Japanese (3)
Spanish (7)

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