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Links to chat rooms, web sites and information about Von Hippel Lindau's disease.
Genetic, clinical and imaging features from the NIH.
Information sheet on this disease compiled by NINDS, the National Institute of Neurological Disorders and Stroke.
Information about the organization and the disease. Includes FAQs, newsletter, handbook, meeting schedules and support group data. (Include links to Canadian, Dutch, Japanese and European branches) [English/Spanish/Portuguese/German/Danish/Dutch]